Showing posts with label celiac disease. Show all posts
Showing posts with label celiac disease. Show all posts

Friday, July 30, 2010

Gluten Free baked goods for Sale!!

It's legal to sell baked goods made in a home kitchen! So I am going to give it a whirl.

Here's an article about the new law.

Here's what I will be making this week:

Peanut butter or chocolate chip cookies $.75each
Peach pie (pick up Sunday only) $15
Peach Cobbler $10
Zucchini bread $4
Banana bread $5
Zucchini brownies $5 a pan
whole chocolate cake $15
chocolate cupcakes $.75 each

...

Let me know today if your interested in ordering anything to be picked up either Saturday or Sunday this week. Spread the word to anyone you know who eats gluten free. If it goes well at home, I might work on getting a permanent spot at the market for next season.

Feel free to leave a message here or call me: (616) 318-1825

Wednesday, April 14, 2010

our fave restaurants

Eating out can be sooooo frustrating when you have a food allergy. (*Please note, I understand that celiac is not an allergy, but I use the term because it's the one that everybody seems to get, and for the benefit of those here who are gluten free for other reasons) Even if the restaurant has something you could eat sometimes it's impossible to find out for sure because the staff is not educated on the issue. I get so upset when we encounter people in the food industry who lack the knowledge needed to answer our questions about the menu. I continually meet people who honestly don't even understand what wheat is! If you don't believe me, here is an example:

One time in a burger place I ordered my youngest daughter a burger without the bun, the waitress looked at me confused so I told her that my daughter couldn't have wheat. She replied, "Oh, we don't have wheat buns, we only have white buns." No joke.

Our worst experiences have taken place while traveling. It's so hard to go someplace your not familiar with. For a very long time after going gluten free, we didn't eat out at all. We still don't eat out as often as we used to, but it is so nice to be able to go out to eat sometimes, especially in social situations and on special occasions.

Here's a list of the places we frequent because they have gluten free options and are knowledgeable about it. Click on the name to visit their website.

Noodles - They really only have one gluten free entree, Pad Thai, but it's Lily's fave dish. I think some of the soups and definitely the salads are gluten free. They have great allergy info both in the store and on their website and when you order you tell them 'gluten allergy aware' and they will flag the order so that it is prepared separately from any gluten ingredients. Get a punch card, every 10th meal is free and be sure to sign up for their email list. They will send you a coupon for FREE noodles from time to time.

Qdoba- They actually have a lot of gluten free options. My kids love the gumbo soup. You can get any of the burritos 'naked' and have chips instead of the flour tortilla. If you go, make sure you get their loyalty card because every 8th entree is FREE! They also send good coupons to your email.

Marie Catrib's- What a great local place! They always have the best gluten free options, including gluten free bread for the sandwiches! They have both rye and white. The first time Rich went there and ordered a sandwich on Rye, he panicked after the first bite because it tasted sooooo good he couldn't believe it was gluten free and assumed they had made a mistake. The waitress reassured him it was gf and he enjoyed every bite! They also make really good hummus!

Brick Road Pizza - has gluten free Pizza! It's good and we love the atmosphere of the place but think it's quite pricey. But can you place a value on pizza night? Our eating habits have changed a lot over the years, and we don't crave pizza very often, but everybody deserves a pizza party from time to time!

Palace of India- Oh, soooo yummy. We have come to love Indian food, especially after discovering that the breading on the vegetable pekora is not wheat flour, but chickpea flour! Mmmmmm, fried califlower! Our favorite dish is the curry chicken.

I just bought a bunch of coupons for Brick Road, Palace of India and a few other local places at restaurant.com. They are having an 80% off sale till tomorrow, so hurry over there to buy yours! It makes eating out a whole lot more affordable! If you miss this sale, become their fan on Facebook to find out when they go on sale again!

One place we don't eat: APPLEBEES! and we learned that the hard way. I don't think I have ever had good service there and they are not very gluten free friendly. The last time we went there (we were traveling and didn't have a lot of options), poor Daisy had to sit sadly coveting me and Rosie's (glutenous) food, waiting for her dinner because they brought her food on a bun even after a lengthy conversation with the waitress about wheat and the fact that she couldn't have it. She obviously had no understanding of what your basic foods are made out of cause while ordering, AFTER I explained, she offered us pasta! Really. I just think if your gonna work in the food industry you should be required to have a basic knowledge of food. Maybe I'm asking too much.

Saturday, April 25, 2009

Quinoa

As promised, here is everything I have learned about Quinoa thanks to Wikipedia and the Gluten Free Girl and a little time spent messing around in the kitchen.

Quinoa
(pronounced /ˈkiːnoʊ.ə/ or /kwɨˈnoʊ.ə/, Spanish quinua, fromQuechua kinwa), a species of goosefoot (Chenopodium), is a grain-like crop grown primarily for its edible seeds. It is a psuedocereal rather than a true cereal, or grain, as it is not a grass. As a chenopod, quinoa is closely related to species such as beets, spinach and tumbleweeds. Its leaves are also eaten as a leaf vegetable, much like amaranth, but the commercial availability of quinoa greens is currently limited. Unlike wheat or rice, quinoa contains a balanced set of essential amino acids for humans, making it an unusually complete protein source. (from Wikipedia)

This is what the plant looks like:

and this is what whole grain Quinoa looks like when you cook it. It is cooked similarly to rice, 1 part quinoa to one part water brought to a boil, then covered and simmered for 20 minutes or until all the water is absorbed. It can also be cooked in vegetable or chicken broth for more flavor.

When I cook it, I usually make 2 cups of Quinoa at once. We eat half with one recipe that day and I save the other half in the fridge for a few days later with something else. Lily likes to eat it plain with just some Bragg's Liquid aminos on it. It tastes especially good with corn and goes well with roasted vegetables too.

Quinoa is available in many forms. We buy this Quinoa and corn pasta, which is really good. It's available at Harvest Health and even Meijer I think.


Here is a meal I have made twice now with Quinoa and we have all really liked it. It is basically black beans cooked with oinions, green chiles and lots of fresh cilantro served on top if the Quinoa and topped with cheese and chrunched up tortilla chips. The time I made gluten free corn bread and fried plantains to go with it.


Daisy likes it!

I also discovered that Quinoa is a great stand in for the cracked wheat in traditional middle eastern tabouli, from a great recipe for a Southwest Quinoa tabouli. I ate it on tortilla chips and it was awsome. To make it follow the recipe below adding black beans and corn, omitting the cucumber and replacing the parsley with cilantro. Have fun expiramenting and let me know what you make!

Here is the recipe for the traditional tabouli:

Tabouli

2 cups cooked and cooled Quinoa
1 cucumber, chopped
2 small tomatoes, chopped
1 bunch green onions, (8) sliced
1/2 cup fresh chopped mint
2 cups fresh chopped parsley
1 clove garlic, minced (optional)

*this is also extra yummy with some Feta cheese mixed in!

Dressing:
1/2 cup fresh lemon juice
3/4 cup extra virgin olive oil
1 tablespoon pepper
2 teaspoons salt, or to taste



  • Cook the Quinoa by boiling 2 cups water and stirring in 1 cup of rinsed Quinoa. Stir once then cover and simmer for 15 minutes or until all water is absorbed. Cool.
  • Combine the salad ingredients, including Quinoa, in a medium bowl.
  • Mix the dressing ingredients together and stir into the salad mixture.
  • Serve chilled.It is best to cover the mixture and let it sit in the fridge for a hour or more so all the flavors can mix together.
  • Wednesday, April 22, 2009

    Gluten Free Grains

    When you are first learning to eat gluten free, it seems as though the whole world is made of wheat. Sometimes when I was in the grocery store I would look at entire aisles in amazement that every item on the shelf was made of wheat. Even for someone who can tolerate it, is a diet so narrow really healthy?

    Once we had cut all the wheat in our lives, it suddenly seemed as though all we were consuming was rice. When I took stock of the items we were buying to replace our wheat products, I realized that everything we were buying (and spending way too much on) was made of some form of rice. The pastas, the cookies, the cereals... This couldn't be healthy either.


    I am not sure how it came to be that we only consume so few grains in this country and why there are so many other healthier grains grown here and all around the world (something to do with profits I assume). How is it that most Americans have never even heard of them when many of them are grown here? I had never heard of many of them until we had to start eating gluten free, but now I am on a quest to try them all and incorporate them into our diets. You can't buy these things ready made in a box, so I am learning to cook; to really cook, real food. I laugh now because in all the 10 years that we have been married (which is actually all of my adult life) I have never really spent any time being concerned about preparing food. Now I find myself washing out canisters that have been on the shelf as decoration in order to store the large quantities of bulk grains and flours that I have been buying. I have had to blow dust off of the stack of cookbooks on top of the refrigerator in order to find recipes to try with these new foods and I am excited by it all. This Celiac diagnosis my family has been given has in some ways been a blessing. without it, I probably never would have taken the time to learn about new foods and cooking. It feels very good to prepare real, good food for my family that will help them grow and be healthy.

    Here is a list and a quick synopsis of the inherently gluten free grains I have recently discovered, purchased and set out to learn how to cook and eat. As I try each of them I will share what I learn and the recipes that we like.

    Quinoa has been a staple grain in South America for thousands of years. It is as high in protein as milk and high in calcium, b vitamins, potassium and zinc. It's the only one of these grains I have used very much yet and my next post will be dedicated to how we've been eating it.

    Millett First grown in China, it was considered a sacred grain, but for some reason it fell out of favor with the upper classes and today is considered poor man's food in most of the world. In the United States however, we don't even consider it fit for human consumption and mostly only sell it as bird feed even though it is extreemly high in iron and is a complete protein.

    Amaranth An ancient grain, first grown thousands of years ago in Mexico. It is high in iron, fiber, and amino acids. It is tiny and round.

    Sorghum The United States is actually the largest grower of Sorghum in the world. Imagine that. Ever heard of it? What do we do with it all if no one here eats it? Sorghum flour is great for making gluten free breads. I have a great recipe I have been looking forward to trying. I just got a kitchenaid mixer and I can't wait to put it to good use!

    Teff is the staple grain of Ethiopia and I bought some because I am excited to try making traditional Ethiopian injera bread. It is a thin spongey pancake like bread that is kind of sour. It is used to scoop up food in liue of utensils in Ethiopian cuisine. It is extreemly nutritious containing lots of protein, calcium and iron. One cup of teff contains the entire USDA recommended ammount of iron for an adult for one day!

    This information came from the book, Gluten Free Girl, which I highly reccomend! The author, Shauna Ahren has a great blog too!

    Saturday, April 4, 2009

    about Celiac disease

    In response to Kathy's comment on my last post, here is some information about Celaic:

    Celiac Disease (CD)
    is a lifelong, digestive disorder affecting children and adults. When people with CD eat foods that contain gluten, it creates an immune-mediated toxic reaction that causes damage to the small intestine and does not allow food to be properly absorbed. Even small amounts of gluten (I have read that one crumb the size of the head of a pin is enough to make someone with CD very sick) in foods can affect those with CD and cause health problems. Damage can occur to the small bowel even when there are no symptoms present. It is not an allergy, it is an autoimmune disease with serious long term consequences such as malnutrition and cancer if not taken seriously. It is estimated that 1 in every 100 people has it and 97% of them are currently undiagnosed. I would list the symptoms here but the list is so long it would take up too much space! So here's a blog post dedicated to the symptoms of Celiac disease.


    Gluten is the common name for the proteins in specific grains that are harmful to persons with celiac disease. These proteins are found in ALL forms of wheat (including durum, semolina, spelt, kamut, einkorn and faro) and related grains rye, barley and triticale and MUST be eliminated. Oats should be avoided too, and we do. They are naturally gluten free, but it's just that they are so often cross contaminated in the growing, harvesting and processing. Some people eat them and other say they react to them. It is possible to buy gluten free oats. It sounds easy in theory to eliminate these items from your diet, but I am still amazed at the ridiculous places that gluten hides. Especially in processed pre packaged foods, such as otherwise gluten free foods flavored with Barley malt. It is in many candies, used as thickeners in sauces and soups and as an anticaking agent in many foods. It takes extreem vigilance to follow a gluten free diet.

    Corn, thankfully is ok. It does NOT contain gluten. making mexican food one of our favorite meals around here. We also eat lots and lots of corn tortilla chips. Locally made El Matador are our favorite and the factory has confirmed that they are gluten free. We have to consult the internet and call numerous companies to verify if a food is gluten free. There is this law about labeling foods with allergy information, but it isn't really that helpful for people with celiac. They are required to label things that contain wheat, but not gluten which is found in many things that don't actually contain wheat.

    Celiac disease is hereditary runs very strong on Rich's mother's side of his family. His mother and grandmother and many of his aunts, uncles and cousins have it and many more most likely have it but have not been diagnosed. It is something we should have been looking into sooner considering how prevalent it is in his family, but we just never really thought about it, I think we were in subconscious denial. Lily and Rich have now been gluten free for about a year. Both of them have seen major improvements in thier digestive health as a result, but for both of them the biggest difference is the almost complete releif from the severe anxiety that they both suffered from on a regular basis. Read my previous post to hear about Daisy's journey.

    There is much to learn, Here's some resources for more info:

    celiac.com

    celiac.org

    our local celiac kids support group


    celiac kids support group on facebook

    the many symptoms of celiac

    http://www.glutenfreeworks.com/symptomology.php
    Gluten Free Works Symptom Guide
    How can I tell if I have a problem with gluten?
    This is a common question people ask in the face of a bewildering array
    of possible symptoms. We have developed a Symptom Guide below to
    help you identify possible symptoms and health problems that you can
    present to your doctor.
    Here is the list of over 300 Signs, Symptoms, Associated Disorders and
    Complications directly or indirectly resulting from celiac disease.
    We were the first to present this information in our comprehensive book,
    "Recognizing Celiac Disease." This list is now being used by celiac disease
    centers, national celiac organizations and health organizations worldwide.

    1. BLOOD SYSTEM PROBLEMS
    Abnormal levels of blood components and quality of blood cells and
    plasma, detected by blood studies ordered by a doctor.
    Anemia, Folic acid deficiency
    Anemia, Iron deficiency
    Anemia, Vitamin B12 deficiency
    Anti-endomysium (EMA) antibodies present
    Anti-gliadin antibodies (AGA) present
    Anti-tissue transglutaminase antibodies (tTG) present
    Associated auto-immune antibodies present
    Bone alkaline phosphatase, elevated level
    Calcium, low
    Cholesterol, too low - below 156
    Coagulation factors, low
    Copper, low
    Hemochromatosis
    Homocysteine, elevated
    Hyperprolactinemia
    Hypoprothrombinemia
    Hypertransaminasemia
    Hypoglycemia
    Idiopathic thrombocytopenic purpura
    Macroamylasemia
    Macrocytosis
    Macrolipasemia
    Magnesium, low
    Neutropenia
    Phosphorous, low
    Plasma proteins, low
    Potassium, low
    Prolonged prothrombin time
    Transient erythroblastopenia
    Zinc, low

    2. BODY COMPOSITION PROBLEMS
    Disorders of the body as a whole.
    Anorexia
    Appetite, increased
    Cachexia
    Obesity
    Vitality, loss of
    Weight gain, unexplained
    Weight loss, unexplained

    3. CARDIOVASCULAR SYSTEM PROBLEMS
    Disorders of the heart and blood vessels.
    Angina pectoris
    Aortic vasculitis
    Atherosclerosis
    Cardiomegaly
    Cardiomyopathy, idiopathic dilated
    Coronary artery disease
    Easy bruising (ecchymosis)
    Hypertension, reversible
    Nosebleeds, unexplained

    4. DIGESTIVE SYSTEM PROBLEMS
    The following symptoms in this section may be present alone or in any
    combination in celiac disease. They result from inflammation, damage,
    and interference with normal function caused by gluten exposure in the
    digestive tract itself. As you see, problems can develop not only in the
    small intestine where inflammation can be intense, but also in other
    areas such as mucosal tissues of the mouth, esophagus, stomach and
    colon.
    Abdominal distention (bloating)
    Abdominal pain
    Abnormal appetite
    Autoimmune cholangitis
    Bacterial overgrowth (small intestine)
    Bleeding unexplained
    Cancer - adenocarcinoma of the small intestine
    Cancer - esophagus
    Cancer - esophageal small cell
    Cancer - pharynx
    Cancer - post-cricoid
    Candida infections
    Canker sores (aphthous ulcers) in mouth
    Carbohydrate malabsorption
    Cheilosis - (red lips, cracking/ oozing at corners of mouth)
    Colitis - collagenous
    Colitis - lymphocytic
    Colitis - ulcerative
    Colonic volvulus - (loop of bowel twists so as to strangulate it)
    Constipation
    Constipation alternating with diarrhea
    Crohn's Disease
    Delayed gastric emptying- (early fullness after eating)
    Diarrhea, acute
    Diarrhea, chronic
    Duodenal erosions in the second part of duodenum
    Dysphagia - (difficulty swallowing)
    Edema of intestines
    Esophageal motor abnormalities - (poor propelling of food)
    Food allergies, IgE and non-IgE
    Gas
    Gastric ulcer - (stomach ulcers)
    Gastric ulcerations, multiple
    Gastritis, collagenous
    Gastritis, lymphocytic
    Gastro-esophageal reflux disease (GERD)
    Gastro-intestinal bleeding, occult - (blood not visible)
    Gluten sensitive enteritis
    Gums, bleeding/ swollen - (purplish in adults/ red in children)
    Heartburn
    H. Pylori Bacter infection of stomach
    Impaired gall bladder motility
    Intestinal edema
    Irritable bowel syndrome
    Jejunitis, chronic
    Lactose intolerance - (gas, bloating, loose stools from milk)
    Laryngospasm
    Leaky gut syndrome
    Lymphoma
    Malabsorption of nutrients (see below)
    Maltose intolerance - (gas, bloating, loose stools from starch)
    Milk intolerance, cow - (similar to gluten enteropathy)
    Nausea
    Non-alcoholic fatty liver disease
    Oral mucosal lesions
    Pale, smelly, floating stool - (hard to flush or sticks to toilet)
    Plummer-Vinson syndrome
    Primary biliary cirrhosis - (bile backs up in liver)
    Primary sclerosing cholangitis - (scarring of bile ducts in liver)
    Small bowel intussusception - (loop of bowel slips into another)
    Sucrose intolerance - (gas, bloating, mucous in stool from sugar)
    Swallowing - difficulty (dysphagia)
    Tongue - beefy, red, smooth, burning
    Tongue - fiery red, smooth, swollen, sore
    Tongue - magenta, swollen
    Tongue - pale, smooth, burning
    Tooth defects - yellowing, white spots, missing enamel
    Vomiting

    5. GLANDULAR SYSTEM PROBLEMS
    Disorders of the glands.
    Addison's Disease - (adrenal gland failure)
    Autoimmune hepatitis
    Autoimmune thyroiditis - (hypothyroidism)
    Diabetes mellitus type I - (pancreatic failure)
    Diabetic instability
    Gastro-intestinal complications of type 1 diabetes
    Grave's Disease - (hyperthyroidism)
    Hepatic granulomatous disease
    Hyperparathroidism, Primary
    Hypoparathyroidism, Idiopathic
    Hypoparathyroidism, Secondary
    Non-alcoholic fatty liver disease
    Pancreatic insufficiency
    Parathyroid carcinoma
    Steatorrhea

    6. IMMUNE SYSTEM PROBLEMS
    Disorders of antibody production.
    Allergic rhinitis
    Antiphospholipid syndrome
    Asthma
    Autoimmune disorders in CD
    Autoimmune disorders in dermatitis herpetiformis
    Autoimmune polyglandular syndromes
    Common variable immunodeficiency
    IgA deficiency
    Sarcoidosis
    Sjogrens syndrome
    Systemic lupus erythematosus
    Urticaria, chronic - (hives)

    7. INTEGUMENTARY SYSTEM PROBLEMS
    Disorders of skin, hair, and nails.
    Alopecea areata - (patches of hair loss)
    Alopecia, diffuse - (balding)
    Cutaneous vasculitis
    Cutis laxa, generalized acquired
    Dermatitis herpetiformis
    Dermatomyositis
    Eczema
    Edema
    Eythema elevatum diutinuum
    Erythema nodosum
    Follicular hyperkeratosis - (dry rough skin/ plugs on arms)
    Ichthyosis, acquired
    Itchy skin rash
    Hangnail
    Koilonychia - (thin nails that flatten then turn up or spoon)
    Melanoma
    Nails - dry and brittle that chip, peel, crack or break easily
    Nails - horizontal and vertical ridges; fragile
    Nail - rounded and curved down ends, dark, dry
    Nails - white spots
    Nails with splinter hemorrhages
    Pityriasis rubra pilaris
    Prurigo nodularis (Hyde's Prurigo)
    Psoriasis
    Scleroderma
    Seborrhea
    Thin hair
    Vitiligo

    8. LYMPATIC SYSTEM PROBLEMS
    Disorders of the lymphocytes (white blood cells), lymph nodes
    and spleen.
    B-cell non-Hodgkin's Lymphoma
    Cryptic intestinal T-cell lymphoma (refractory sprue)
    Enteropathy associated T-cell Lymphoma (EATL)
    Extraintestinal Lymphomas
    Intraepithelial lymphocytosis in small bowel samples
    Lymphadenopathy
    Mesenteric lymph node cavitation
    Hyposplenism - (atrophy of spleen leads to failure)

    9. MUSCULAR SYSTEM PROBLEMS
    Disorders of muscle structure and function.
    Hypkalemic rhabdomyolysis - (acute, severe
    potassium deficiency)
    Muscle pain and tenderness
    Muscle spasm and cramps
    Muscle wasting
    Muscle weakness
    Osteomalcic myopathy
    Polymyositis
    Tetany

    10. NERVOUS SYSTEM PROBLEMS
    Disorders of nerves, brain and spinal cord structure and function.
    Anxiety
    Apathy
    Ataxia, gait disturbance
    Ataxia, gluten
    Ataxia, progressive myoclonic
    Brain atrophy
    Cerebral perfusion abnormalities - (poor blood flow)
    Chonic fatigue syndrome
    Chorea
    Cortical calcifying angiomatosis
    Dementia
    Depression
    Epilepsy
    Fatigue/ lassitude, chronic
    Headache
    Inability to concentrate
    Insomnia
    Irritability
    Migraine
    Multiple sclerosis
    Nervous system disorders
    Peripheral neuropathy
    Progressive multifocal leukoencephalopathy
    Schizophrenic spectrum disorders
    Tremors
    Vasculitis of the central nervous system

    11. PULMONARY SYSTEM PROBLEMS
    Disorders of lung tissue and broncheal tree structure and function.
    Bronchiectasis
    Bronchoalveolitis, Lymphocytic (bronchial pneumonia)
    Idiopathic pulmonary hemosiderosis
    Increased pulmonary permeability
    Increasee susceptibility to tuberculosis
    Lung cavities or abcess
    Pneumococcal septicemia
    Tuberculosis, non-response to treatment

    12. SENSORY SYSTEM PROBLEMS
    Disorders of sense organ structure and function.
    Bitot's spots - (foamy patches on whites of eye)
    Blepharitis, unexplained
    Bloodshot eyes, chronic
    Blurred vision, unexplaines
    Cataracts
    Keratoconjunctivitis sicca
    Keratomalacia
    Night blindness
    Ocular myopathy
    Uveitis, bilateral
    Xerophthalmia
    Loss of smell
    Dysgeusia (loss of taste)

    13. SKELETAL SYSTEM PROBLEMS
    Disorders of bone, joints and teeth.
    Bone fracture
    Bone pain
    Osteitis fibrosa
    osteomalacia
    Osteonecrosis
    Osteoporosis
    Arthritis, enteropathic
    Arthritis, psoriatic
    Arthritis, recurrent monoarthritis

    14. URINARY SYSTEM PROBLEMS
    Disorders of kidneys and urinaty tract structure and function.
    Hypocalciuria
    IgA nephropathy
    Kidney stones
    Urinary tract infection

    15. REPRODUCTIVE SYSTEM PROBLEMS IN FEMALES
    Disorders of organ structure and function.
    Amenorrhea, secondary
    Infertility
    Late menache - (start of periods)
    Menopause, early
    Premenstrual syndrome
    Dysmenorrhea (painful periods)
    Dyspareunia - (painful intercouse)
    Vaginitis

    REPRODUCTIVE SYSTEM PROBLEMS IN MALES
    Disorders of organ structure and function.
    Hypogonadism, unexplained in adults
    Impotence
    Infertility
    Sperm abnormalities

    16. REPRODUCTION: PREGNANCY, LABOR & DELIVERY AND
    PUERPERIUM PROBLEMS
    Disorders of childbearing.
    Severe iron deficiency anemia in pregnancy
    Short duration of breast feeding
    Miscarriages, spontaneous
    Complications during pregnancy, labor and delivery
    Complications after child birth

    17. ZYGOTE DEVELOPMENT PROBLEMS
    Disorders of chromosomes.
    Down syndrome
    Turner's syndrome

    18. FETUS DEVELOPMENT PROBLEMS
    Disorders of that occur before birth of the child.
    Congenital anomalies
    Intrauterine growth retardation
    Cystic fibrosis
    Spina bifida

    19. CHILD DEVELOPMENT PROBLEMS
    Disorders of children that occur after birth.
    Autism and learning disorders
    Attention deficit hyperactive disorder (ADHD)
    Cancer predisposition in children
    Chronic bullous dermatosis
    Delayed puberty in boys
    Delayed pubety in girls
    Dermatitis herpetiformis
    Developmental delay
    Failure to thrive and growth retardation
    Fecal occult blood in stool - (hidden)
    Glycogenic acanthosis
    Hypotonia
    Juvenile autoimmune thyroid disease
    Juvenile diabetes type 1
    Juvenile idiopathic arthritis
    Abnormal blood studies
    Latent anemia in enzymopthies of small intestine - (lack
    of enzymes that finish digestion of protein/ sugars)
    Penicilllin V impaired absorption
    Refractory anemia ( does not respond to iron therapy)
    Osteopenia
    Rickets
    Short staure
    Stroke in childhood
    This ends the listing from "Recognizing Celiac Disease."

    __________________________
    ___________________________

    Here are some other ways to look at problems:

    BEHAVIOR PROBLEMS
    Aloofness
    Hyperactivity
    Irritability is an early symptom. It is common in children.
    Impatience
    Lack of desire to get things done
    Lack of feeling
    Restlessness
    Timid behavior
    Violent behavior

    NEUROLOGICAL ISSUES
    Anxiety
    Apathy
    Bipolar disorder
    Depression
    Difficulty making friendships
    Easy frustration and anger
    Nervousness
    Panic attacks
    Sense of worthlessness
    Overly self-criticism
    Hysteria
    Hypochondria

    THINKING PROBLEMS
    Confused/ faulty thinking
    Confabulation
    Delusional
    Dementia
    Disorientation
    Faulty learning
    Hallucination
    Inability to concentrate
    Inattentiveness
    Loss of memory
    Loss of immediate memory
    Poor memory
    Psychiatric disorders
    Reduced learning
    Slow thinking
    Scattered thinking

    ASSOCIATED DISORDERS IN CD
    Addison's Disease
    Allergic Rhinitis
    Alopecia Areata
    Angina Pectoris
    Antiphospholipid Syndrome
    Arthritis
    Asthma
    Ataxia
    Autoimmune Hepatitis
    Autoimmune Polyglandular Syndromes
    Bitot's Spots (eyes)
    Blepheritis (eyelids)
    Bloodshot eyes
    Bronchiectasis
    Cardiomegaly
    Chronic Bullous Dermatosis of Childhood
    Chronic Hives
    Chorea
    Common Variable Immunodeficiency
    Coronary Artery Disease (CAD)
    Cortical Calcifying Angiomatosis
    Dermatomyositis
    Diabetes
    Diabetic instability
    Eczema
    Erthema Elevatum Diutinum
    Erythema Nodosum
    Graves's Disease (hyperthyroidism
    Hepatic granulomatous disease
    Hypertension
    Hypogonadism
    Hypokalemic Rhabdomyolysis
    Icthyosis, acquired
    Idiopathic dilated cardiomyopathy
    Idiopathic hypoparathyroidism
    Idiopathic thrompbcytopenic purpura
    IgA deficiency
    IgA Nephropathy
    Impotence
    Kidney Stones
    Loss of vitality
    Multiple Sclerosis
    Neutropenia
    Osteomylacic Myopathy
    Peripheral Neuropathy
    Pityriasis Rubra Pilaris
    Polymyositis
    Primary hyperparathyroidism
    Psoriasis
    Sarcoidosis
    Scleroderma
    Seborrhea
    Sjogren's syndrome
    Systemic Lupus Erythomatosus
    Tremors
    Urinary Tract Infection
    Vitiligo

    COMPLICATIONS OF CD
    Aortic vasculitis
    Atherosclerosis
    B-cell non-Hodgkin's lymphoma
    Bone Fractures
    Bone Pain
    Brain Atrophy
    Bronchial Pneumonia
    Cancer Predisposition in Children
    Cataracts
    Chronic Fatigue Syndrome
    Congenital Anomalies
    Cystic Fibrosis
    Dementia
    Down Syndrome
    Enteropathy associated T-cell Lymphoma (EATL)
    Epilepsy
    Extraintestinal Lymphomas
    Hyposplenism
    Infertillity, Female
    Infertility, Male

    I told you this is a long list! and I am sure there are even more things that could be added!

    Wednesday, April 1, 2009

    Daisy


    Our poor little Daisy has had a rough few weeks. She has been pretty sick. We have all had a lot of nasty virus this winter, but the last few weeks have been really hard on Daisy. She's had a constant runny nose and cold, and digestive issues, then she got hit by a really awful stomach bug 2 weeks ago. She ended up in the ER needing IV fluids for dehydration and it just seemed that she was having a really hard time kicking it.

    I have suspected that she too has Celiac Disease for some time, so I had her on a gluten free diet for 6 weeks, but put her back on wheat about 6 weeks ago because I didn't think I had seen much of a difference and we were also finally going to get into see the Pediatric Gastroenterologist at Devos Children's Hospital that we had been waiting to see for over 5 months. I knew that she would order blood tests that would require that Daisy be consuming wheat. I was surprised however when the Dr. recommended that she consume wheat for three months before having the blood test. We didn't make it that long however. Even after recovering from the stomach flu, she was still having constant diarrhea, sometimes 6 or more times a day.

    She was so uncomfortable, so we went for the blood test on Wednesday. It had seemed so important to have the medical diagnosis... but it got so bad that it just felt like torture. Do I really need a Dr. to tell me my kid shouldn't eat wheat? As soon as we left the lab Daisy went completely gluten free again.

    Less than 24 hours later she had her first solid poop in over 6 weeks.

    So we are still waiting for the results of the blood work, but I already have my answer. It couldn't be any more obvious. It's only been two days now without wheat and I can't believe the difference. I really believed that going gluten free would solve her discomfort, but I had no idea it would happen so fast.

    So no more gluten at our house, the number of people who can't it now out number the ones who can. I am very thankful though that this is a disease that can be overcome. My family can be healthy. We must simply (it's simple in theory anyway) eat a gluten free diet.

    Sunday, March 29, 2009

    Better Bannana Bread


    I recently posted about our favorite banana bread recipe, but I have been experimenting lately with some different kinds of gluten free flours and I have modified the recipe a little so that it is a little less crumbly by using some sweet rice flour and soy flour in place of 1/2 a cup of the flour mix. Here is the new revised recipe:

    Ingredients:

    1 cup gf flour mix flour

    1/4 cup sweet rice flour

    1/4 soy flour

    1 1/2 tsp baking powder

    1/4 tsp baking soda

    1/4 tsp ground cinnamon

    1/8 tsp salt

    1 egg

    1 cup mashed ripe bananas (3 medium)

    3/4 cup sugar (or less, 1/4 cup is enough)

    1/4 cup cooking oil (e.g. canola oil)

    1/2 cup chopped walnuts (optional)

    Preparation:

    Grease the bottom and 1/2 inch up the sides of an 8x4x2-inch loaf pan; set aside. In a medium mixing bowl combine the flour, baking powder, baking soda, cinnamon, and salt. Make a well in the center of dry mixture; set aside.

    In another bowl combine the egg, bananas, sugar and cooking oil. Add egg mixture all at once to dry mixture. Stir just till moistened (batter should be lumpy). Fold in nuts.

    Spoon batter into the prepared pan. Bake in a 350 degree oven for 50-55 minutes or till a wooden toothpick inserted near center comes out clean. Cool in pan on a wire rack for 10 minutes. Remove loaf from pan; cool on rack. Wrap and store overnight before slicing. (I never do this. It's so good warm out of the oven! and I don't think waiting works well with Gluten Free bread really.) Makes 1 loaf (16 servings).

    From Better Homes and Gardens New Cook Book

    Monday, December 15, 2008

    Celiac article in Parents Magazine

    A friend just alerted me to an article in this month's issue of Parents Magazine about Celiac disease. It was actually a great article and I was surprised to find it in such mainstream media. It seems as though Celiac is starting to gain some attention.

    They have lots of good tips and info on their website in the featured this month section. Here is a link to the article. I am planning on making some gluten free playdough with the kids soon and I am hoping the recipe they gave will be a good one. Playdough has always been a favorite activity for our kids. We have a ton of playdough toys, but no playdough anymore. I'll let you know how it turns out when we get time to try it.